I haven't done good at posting notes, because most of the time I'm not feeling good about where we are at. But each time we get another bend in the road - Rachael steps up and is full of love and strength!
This weekend we will have 18 Students to our house for the 30 hr Famine. It will be a great time and a wonderful distraction from life.
Next Wednesday Rach has another EEG (24 hr test) and we will begin the Genetic testing. Please keep us in your prayers as we pursue answers!
Thursday, April 23, 2009
Monday, April 06, 2009
What Is Next for Rachael
Rach and I saw her doctor last week Tuesday. The EEG report showed significant seizure activity and her heart is still having arythmic concerns. Today, 4/6, she will be having an MRI done at the 68th street center and seeing the Ped-Neurologist on 4/13. Continued prayers for her safety and that we (along with the doctors) are able to make the right decisions.
Wednesday, April 01, 2009
Rach Saw the Doctor
Dear friends,
Well, we were able to see Rachael's primary doctor yesterday. We got some answers and many more questions. Yesterday was a very rough day for me - I just wasn't able to write on the blog. Dr Talmo was able to give us more information in regards to the ER report she received and we talked about the results of the EEG done a week in a half ago.
The EEG was abnormal and showed seizure activity in the right side during waking tests and during the hyperventilation activity. It indicates she has a lowered seizure threshold and we definatly need to continue to move forward. We are working at getting an appointment with a Pediatric Neurologist and an MRI.
In addition, the EKG they did in the hospital showed high junctional rhythmic problem, which Dr Talmo was able to clearly detect during her evaluation of Rachael. We send in Rach's heart monitor on Thursday so we will contact the Heart Specialist next week if we don't hear from them right away.
Yes, we are doing okay. I'll admitt that I'm angry, sad, and frustrated. This was NOT my desire for any of our kids. The doctor did say this doesn't look like the same type of seizures I'm dealing with and I didn't give it to her. That's just not what it feels like right now. Rach is doing good. Of course she doesn't want to worry me. We've had a few tears, especially with stories of how people and children have been praying for her recently (thank you Sam). It is such a blessing to know we are not walking through this alone! "Thy rod and staff - they comfort me."
Please pray that Rachael stays safe at school, with friends and during her outings. Pray also that we are able to get into the neurologist very soon.
Thanks for caring enough to check out blog -
Blessings, Cheryl & the Smith Gang
Well, we were able to see Rachael's primary doctor yesterday. We got some answers and many more questions. Yesterday was a very rough day for me - I just wasn't able to write on the blog. Dr Talmo was able to give us more information in regards to the ER report she received and we talked about the results of the EEG done a week in a half ago.
The EEG was abnormal and showed seizure activity in the right side during waking tests and during the hyperventilation activity. It indicates she has a lowered seizure threshold and we definatly need to continue to move forward. We are working at getting an appointment with a Pediatric Neurologist and an MRI.
In addition, the EKG they did in the hospital showed high junctional rhythmic problem, which Dr Talmo was able to clearly detect during her evaluation of Rachael. We send in Rach's heart monitor on Thursday so we will contact the Heart Specialist next week if we don't hear from them right away.
Yes, we are doing okay. I'll admitt that I'm angry, sad, and frustrated. This was NOT my desire for any of our kids. The doctor did say this doesn't look like the same type of seizures I'm dealing with and I didn't give it to her. That's just not what it feels like right now. Rach is doing good. Of course she doesn't want to worry me. We've had a few tears, especially with stories of how people and children have been praying for her recently (thank you Sam). It is such a blessing to know we are not walking through this alone! "Thy rod and staff - they comfort me."
Please pray that Rachael stays safe at school, with friends and during her outings. Pray also that we are able to get into the neurologist very soon.
Thanks for caring enough to check out blog -
Blessings, Cheryl & the Smith Gang
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